IgAN Blog

Frequently asked questions

What is mama health?

Mama Health is a free, user-friendly platform designed to support individuals managing chronic illnesses. By sharing your health experiences, you can receive personalized insights, access a comprehensive medical report, and learn from the experiences of others with similar conditions. Our AI-driven system provides instant, tailored answers to your health questions, complementing the care you receive from healthcare professionals. Your participation also contributes to a growing community knowledge base, helping to improve healthcare for everyone.

What is the purpose of mama health?

We’re working toward a world free of disease.

The healthcare system is missing a crucial piece—real patient experiences. We bring those voices back into the system, making healthcare truly patient-centric. By connecting data from patients, doctors, hospitals, and research, we help unlock new insights, improve treatments, and turn today’s incurable diseases into tomorrow’s breakthroughs.

How can mama health benefit me as a patient?

- Find answers faster – Get insights from real patients and medical research, all in one place.

- See what works – Learn from others with the same condition and avoid trial-and-error treatments.

- Get a clear health picture – Track your journey, compare with others, and gain deeper understanding.

- Be part of something bigger – Your experience helps improve healthcare and accelerate research.

Is the info on mama health medical advice?

No, the information here is for educational purposes only. Mama health doesn’t replace medical advice from a doctor. Always consult with your healthcare provider for professional medical advice and treatment options.

Are there any costs to use this website?

Nope! Our website is completely free for patients. We’re committed to offering easy-to-access resources and support to everyone in the patient community.

Is my personal information kept private?

Yes, absolutely. Your privacy is our priority.

We use the information shared on Mama Health to improve treatments and services for all patients. However, we ensure that no one—neither other patients, scientists, nor healthcare companies—can identify you personally.

Who has access to the information in the knowledge database?

Our aim is to use this information to enhance treatments and services for all patients. To achieve this, we make sure that relevant stakeholders—such as other patients, researchers (with pseudonymized data), and healthcare companies (with anonymized data)—can benefit from these insights. We take strict measures to ensure that your personal identity remains protected, and no direct link can be made to you as an individual.

What happens to my data if I decide to delete my account?

You can delete your account at any time and request the deletion of your data from the mama health platform. Most of your data can be accessed through your login. Additional information, as well as our complete privacy policy, can be accessed when you register.

To request the deletion of your data, simply send an email to support@mamahealth.com.

How is mama health funded?

Mama health is a Berlin-based health startup for patients with chronic conditions and their communities. The use of our platform is free for patients and will remain so. The knowledge generated from patient experiences (the so-called "Patient Journey") is relevant for healthcare institutions and organizations, helping them optimize decisions on products, services, and regulations. The collaboration with these clients funds the platform, but they only receive general trends and anonymized insights—never your personal information.

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Frequently asked questions