You are not alone with Endometriosis
Join mama health, together with Prof. Dr. Sylvia Mechsner from the Endometriosis Center at Charité - Medical University Berlin, we are building the largest knowledge database of experience reports from individuals affected by endometriosis and adenomyosis.
Here you will find a safe space where you can share your story and soon connect and exchange with others affected by the same condition.
Director of the Endometriosis Center at Charité Berlin
Learn from patient stories
Did you know that, according to research, it takes an average of 10 years for individuals with endometriosis to receive a diagnosis?
Endometriosis is still a taboo topic in society. One of the major issues is the lack of data. For example, the exact sequence of events leading to a diagnosis remains largely unknown.
It's time to change that!
In this study, we aim to analyze the complete history of endometriosis patients. Your story can significantly contribute to finally shedding light on this issue.
Laura
Support Research
Share your experiences and contribute directly to endometriosis research.
Track Your Own Journey
Visualize your history of symptoms and milestones in a simple timeline that you can share with others if you wish.
Keep Your Journey Updated
Keep your story updated by adding new events as they happen.
Learn from Other Patients
Compare your journey with the stories of others and learn from their experiences.
Mutual Support
Connect with a growing endometriosis community.
Stay Informed About New Discoveries
Stay up-to-date with the latest insights in endometriosis research.
Frequently Asked Questions
Mama health is a Berlin-based health startup aimed at helping patients with similar stories and experiences find each other, exchange information, and learn from one another.
We collect patient experiences and aggregate data to create comprehensive visualizations that can help you better understand your health journey and learn from others. You can also connect with a community of individuals who understand your experiences and can provide support.
Yes! The study is open to everyone in the German-speaking region who has a diagnosis or suspicion of endometriosis or adenomyosis.
Absolutely. We place the highest value on the privacy and confidentiality of your personal information. You ultimately decide which health data (especially symptoms, medications, treatments, etc.) you share with us. All collected data is anonymized, aggregated, and stored securely on German servers to ensure that your identity is protected.
The information provided by mama health should not be considered a substitute for professional medical advice or diagnosis. If you have medical questions or concerns, you should consult a qualified doctor to receive appropriate advice and treatment.
Our goal is to use this information to improve the overall situation. For this reason, we ensure that all actors in the healthcare sector can learn from this data: other patients, scientists (in a pseudonymized form), and healthcare companies (in an anonymized form). We ensure that no direct conclusions can be drawn about you as an individual.
Mama health offers various interactive opportunities such as discussion forums, support groups, and community events to enable connection with other patients. You can join relevant groups, participate in discussions, and share your experiences.
As soon as you register for the study and create a mama health account, you will have access to the "Dashboard" with visualizations and insights based on aggregated endometriosis histories. These insights will help you understand your health journey compared to others and recognize patterns or trends.
You can revoke your participation in the study at any time and request the deletion of your data from the mama health platform at any time. Most of your data can be accessed through your login. Additional information, as well as our complete privacy policy, can be accessed when you register for the study.
Mama health is a Berlin-based health startup for patients with chronic conditions and their communities. The use of our platform is free and will remain so. The knowledge generated from patient experiences (the so-called "Patient Journey") is relevant for companies and institutions in the healthcare industry, helping them optimize decisions on products, services, and regulations. The collaboration with these clients funds the platform.
Important: We never share your personal data; we only validate aggregated/anonymized information as part of this study and aim to publish our findings scientifically in collaboration with Charité.
Still got questions?
If you have questions or need assistance, you can contact our support team using the contact button below. We are here for you!
The development of the chatbot and marketing is being carried out primarily by stud. med. Katrina Holmes. This project is co-funded by the European Union and the State of Brandenburg.
Tell your Story today!