Putting the patient perspective at the forefront of Endometriosis Research
In collaboration with leading expert Professor Dr. Sylvia Mechsner from the Endometriosis Center at the Charité – Medical University Berlin, we have built one of the largest databases of patient-reported experiences with endometriosis and adenomyosis.
Join us at the forefront of endometriosis research: help us deepen the scientific understanding, and ultimately transform the lives of those affected by endometriosis.
Join us at the forefront of endometriosis research: help us deepen the scientific understanding, and ultimately transform the lives of those affected by endometriosis.
Patient-driven insights at scale
Endometriosis is a complex, highly individualized condition that remains poorly understood among both society and healthcare providers. Through our comprehensive knowledge platform, we collect unique real-world data that reveals critical insights into the multifaceted factors driving endometriosis and its impact on patients' daily lives. By publishing and sharing these insights with the medical research community, we are working toward a future where endometriosis patients receive timely, accurate diagnoses and effective treatments based on real-world evidence.
2800+ real-world journeys shared, from initial symptoms through to diagnosis, medical consultations, and treatments.
Aggregated sociodemographic data across all DACH countries for targeted analysis.
Insights also include subjective experiences and advice for other patients.
Our research team
Stay tuned to this page for updates on our research progress, upcoming results, and forthcoming publications.
+2,500 women with Endometriosis
have shared their story
